The Fetal Hope Foundation provides support and information to parents, funds research, and increases awareness about TTTS, TRAP Sequence, Amniotic Band Syndrome, and Urinary Tract Obstruction.
March of Dimes Researchers, volunteers, educators, outreach workers and advocates working together to give all babies a fighting chance
Birth Defect Research for Children a parent networking service that connects families who have children with the same birth defects
Kids Health doctor-approved health information about children from before birth through adolescence
CDC - Birth Defects Dept. of Health & Human Services, Centers for Disease Control and Prevention
NIL - Office of Rare Diseases National Inst. of Health - Office of Rare Diseases

Baby Sarah Elizabeth has a very successful recovery from an SCT which is removed while she is still a fetus.
