Spina Bifida (Myelomeningocele) Support Groups & Links

Management of Myelomeningocele study a research study designed to compare the benefits of prenatal verses postnatal surgery.

Spina Bifida Association of America dedicated to promoting the prevention of spina bifida, enhancing the lives of those with spina bifida, and supporting those whose lives they touch.

Spina Bifida Association of Greater New Orleans organization made up of families and professionals who work together to assist those persons of the New Orleans area born with Spina Bifida and their families

Hydrocephalus Association provides support, education, and advocacy to people whose lives have been touched by hydrocephalus and to the professionals who help them.

March of Dimes Researchers, volunteers, educators, outreach workers and advocates working together to give all babies a fighting chance

Birth Defect Research for Children a parent networking service that connects families who have children with the same birth defects

Kids Health doctor-approved health information about children from before birth through adolescence

CDC - Birth Defects Dept. of Health & Human Services, Centers for Disease Control and Prevention

NIL - Office of Rare Diseases National Inst. of Health - Office of Rare Diseases