Myelomeningocele (Spina Bifida) Support Groups & Links
Spina Bifida Association of America dedicated to promoting the prevention of spina bifida, enhancing the lives of those with spina bifida, and supporting those whose lives they touch.
Management of Myelomeningocele study a research study designed to compare the benefits of prenatal verses postnatal surgery.
Spina Bifida Association of Greater New Orleans organization made up of families and professionals who work together to assist those persons of the New Orleans area born with Spina Bifida and their families
March of Dimes Researchers, volunteers, educators, outreach workers and advocates working together to give all babies a fighting chance
Birth Defect Research for Children a parent networking service that connects families who have children with the same birth defects
Kids Health doctor-approved health information about children from before birth through adolescence
CDC - Birth Defects Dept. of Health & Human Services, Centers for Disease Control and Prevention
NIL - Office of Rare Diseases National Inst. of Health - Office of Rare Diseases
Angela and Guy
The innovative procedures at FTC saved the lives of both Angela and Guy, whom were both diagnosed with severe CCAMs.
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