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Congenital Heart Disease Support Groups & Links

Congenital Heart Information Network Interactive forums, resources, and internet links for families, adults with CHD, nurses, and other health care professionals.

Congenital Heart Defects devoted to providing information to members of the world-wide congenital heart defect (CHD) community

March of Dimes Researchers, volunteers, educators, outreach workers and advocates working together to give all babies a fighting chance

Birth Defect Research for Children a parent networking service that connects families who have children with the same birth defects

Kids Health doctor-approved health information about children from before birth through adolescence

CDC - Birth Defects Dept. of Health & Human Services, Centers for Disease Control and Prevention

NIL - Office of Rare Diseases National Inst. of Health - Office of Rare Diseases

Last Updated: 11/24/2009
Sarah Elizabeth

Sarah Elizabeth

Baby Sarah Elizabeth has a very successful recovery from an SCT which is removed while she is still a fetus.

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Ethne Nerrmana