ACC (Agenesis of the Corpus Callosum) Network an international network to provide information and a communication link for individuals with brain anomalies involving the corpus callosum, their families and the professionals who work with them.
March of Dimes Researchers, volunteers, educators, outreach workers and advocates working together to give all babies a fighting chance
Birth Defect Research for Children a parent networking service that connects families who have children with the same birth defects
Kids Health doctor-approved health information about children from before birth through adolescence
CDC - Birth Defects Dept. of Health & Human Services, Centers for Disease Control and Prevention
NIL - Office of Rare Diseases National Inst. of Health - Office of Rare Diseases
North American Fetal Therapy Network - NAFTNet (the North American Fetal Therapy Network) is a voluntary association of medical centers in the United States and Canada with established expertise in fetal surgery and other forms of multidisciplinary care for complex disorders of the fetus.
The innovative procedures at FTC saved the lives of both Angela and Guy, whom were both diagnosed with severe CCAMs.