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Congenital Diaphragmatic Hernia Support Groups & Links

Cherubs The association of CDH research, advocacy, and support. Information, forums, member blogs, and more.

March of Dimes Researchers, volunteers, educators, outreach workers and advocates working together to give all babies a fighting chance

Birth Defect Research for Children a parent networking service that connects families who have children with the same birth defects

Kids Health doctor-approved health information about children from before birth through adolescence

CDC - Birth Defects Dept. of Health & Human Services, Centers for Disease Control and Prevention

NIL - Office of Rare Diseases National Inst. of Health - Office of Rare Diseases

North American Fetal Therapy Network - NAFTNet (the North American Fetal Therapy Network) is a voluntary association of medical centers in the United States and Canada with established expertise in fetal surgery and other forms of multidisciplinary care for complex disorders of the fetus.

Last Updated: 6/1/2012

The Mitchell Family

Mother tells the story of her experience of the diagnosis of CDH, care in the ICN, and the LIFE Clinic.

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Analisa Amen

Analisa Amen

When Kristen Amen and Tony Garcia learned that their baby would be born with a condition called congenital diaphragmatic hernia (CDH), at first the news was devastating.

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Sam Sieber and sister