Cherubs The association of CDH research, advocacy, and support. Information, forums, member blogs, and more.
March of Dimes Researchers, volunteers, educators, outreach workers and advocates working together to give all babies a fighting chance
Birth Defect Research for Children a parent networking service that connects families who have children with the same birth defects
Kids Health doctor-approved health information about children from before birth through adolescence
CDC - Birth Defects Dept. of Health & Human Services, Centers for Disease Control and Prevention
NIL - Office of Rare Diseases National Inst. of Health - Office of Rare Diseases
North American Fetal Therapy Network - NAFTNet (the North American Fetal Therapy Network) is a voluntary association of medical centers in the United States and Canada with established expertise in fetal surgery and other forms of multidisciplinary care for complex disorders of the fetus.
Mother tells the story of her experience of the diagnosis of CDH, care in the ICN, and the LIFE Clinic.
When Kristen Amen and Tony Garcia learned that their baby would be born with a condition called congenital diaphragmatic hernia (CDH), at first the news was devastating.