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Amniotic Band Syndrome Support Groups & Links

Amniotic Band Syndrome Email Support Group Email support group created for people that have been affected by Amniotic Band Syndrome both before and after birth, or for people born with ABS.

Amniotic Band Syndrome Collection of stories written by families dealing with the complications of amniotic band syndrome.

March of Dimes Researchers, volunteers, educators, outreach workers and advocates working together to give all babies a fighting chance

Birth Defect Research for Children a parent networking service that connects families who have children with the same birth defects

Kids Health doctor-approved health information about children from before birth through adolescence

CDC - Birth Defects Dept. of Health & Human Services, Centers for Disease Control and Prevention

NIL - Office of Rare Diseases National Inst. of Health - Office of Rare Diseases

North American Fetal Therapy Network - NAFTNet (the North American Fetal Therapy Network) is a voluntary association of medical centers in the United States and Canada with established expertise in fetal surgery and other forms of multidisciplinary care for complex disorders of the fetus.

Last Updated: 6/1/2012

The Risner Family

Mother tells the story of her experience of the diagnosis of amniotic band syndrom, and her care at UCSF.

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Thomas Merkord

There was a band wrapped so tightly around Thomas's left ankle that his foot was going to self amputate.

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Max Ho and surfer dad